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Top / Health / Support_Groups / Conditions_and_Diseases / Genetic_Disorders /

Alliance of Genetic Support Groups
National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.
http://www.geneticalliance.org/
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Chromosome Deletion Outreach, Inc. (CDO)
Non-profit voluntary support group for families affected by rare chromosome disorders.
http://www.chromodisorder.org/
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S.O.F.T.
A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders.
http://www.soft.org.uk
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Unique Rare Chromosome Disorder Support Group
Support and information for families of children with rare disorders.
http://www.rarechromo.org/
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S.O.F.T.
Support Organization in the United States for Trisomy 18, 13, and other related disorders. Provides literature, conferences, newsletter, chapter information, and international contacts.
http://www.trisomy.org/
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Cornelia de Lange Syndrome (CdLS) Foundation Outreach
Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make info
http://www.cdlsusa.org
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Ideas
A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15).
http://idic15.org/
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Yahoo Groups Floating Harbor
An active support site for the parents and families of children with Floating Harbor Syndrome.
http://groups.yahoo.com/group/floating_harbor/
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Chromosome Help-Station
Information on rare chromosomal disorders. Support and advice for families.
http://www.chromosomehelpstation.com/
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Distal Trisomy 10q Families
Support for families of children with Distal Trisomy 10q. Family stories, contacts, other information.
http://trisomy10q.darylanderson.com
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